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Cf Great Strides Login

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Jun 06, 21 (Updated: Dec 06, 22)

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1. Cff.org
Scholar Netherlands 2 years ago

Great Strides - Cystic Fibrosis Foundation

http://www.cff.org/great_strides

Great Strides is the Cystic Fibrosis Foundation's largest national fundraiser. ... Search below to find a Great Strides Walk in your area. ... Connect With Us ...

2. Cysticfibrosis.org.uk
Teacher Chennai, India 2 years ago

Great Strides™ - Cystic Fibrosis Trust

https://www.cysticfibrosis.org.uk/get-involved/fundraising/join-our-fu...

Great Strides™ is a team charity walking challenge through some of the UK's most breathtaking countryside. You can pick between 40km or 65km routes in the ...

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3. Ridgecrestca.com
Scholar 2 years ago

Virtual Great Strides CF Fundraiser Walk is Nov. 28-Dec. 12 ...

https://www.ridgecrestca.com/news/20201125/virtual-great-strides-cf-fu...
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4. Glensfalls.com
Populist Valladolid, Spain 2 years ago

Cystic Fibrosis Foundation - Great Strides Walk - Saturday ...

https://www.glensfalls.com/event/walk-cystic-fibrosis-48182/

Get the details on Cystic Fibrosis Foundation - Great Strides Walk and other Glens Falls, NY area events on GlensFalls.com.

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5. Cysticfibrosis.ca
Explainer 2 years ago

The Walk to Make Cystic Fibrosis History

https://www.cysticfibrosis.ca/walk/2020/

... walk will host thousands of participants across Canada at local sites within their communities to celebrate our fundraising efforts and imagine a world without CF.

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6. Campuslabs.com
Disciplined Bochum, Deutschland 1 year ago

Great Strides Cystic Fibrosis Walk - KnightConnect

https://ucf.campuslabs.com/engage/event/894272

This year, APPA will be participating in the Great Strides Cystic Fibrosis Walk again. ... If you are a returning walker, enter your login information. That's it!

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7. Outletsofdesmoines.com
Legendary Northern Virginia Campus, Scholar Plaza, Leesburg, VA, United States 1 year ago

Outlets of Des Moines hosts Cystic Fibrosis Foundation Great ...

http://www.outletsofdesmoines.com/press-release/Outlets-of-Des-Moines-...

2018 marks the 30th anniversary of Great Strides. Since the program began in 1988, the walk has raised nearly $600 million to help drive advances in CF research ...

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8. Chattanooga.gov
Teacher Liverpool, United Kingdom 1 year ago

*CANCELLED* Great Strides Cystic Fibrosis Foundation ...

https://calendar.chattanooga.gov/event/great-strides-cystic-fibrosis-f...
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9. Raisely.com
Reviewer 1 year ago

great strides for cystic fibrosis

https://greatstridescf.raisely.com/

Donate today to show your support for people living with cystic fibrosis. DONATE. Great Strides 2020. LoginDonate.

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10. Cbslocal.com
Announcer United States 1 year ago

CBS New York

https://newyork.cbslocal.com/cystic-fibrosis-great-strides-walk/

Cystic Fibrosis Great Strides Walk 2019. Sunday, May 19, 2019 / 5K Rain or Shine Check-in/Manhattan Registration Begins At 9:00 A.M.. Walk begins at 10:00 ...

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11. Nowplayingutah.com
Informed 1 year ago

Cystic Fibrosis Foundation – Great Strides – Weber-Davis ...

https://www.nowplayingutah.com/event/cystic-fibrosis-foundation-great-...

There are no recent bookmarks. NowPlayingUtah.com logo · subscribe connect ...

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12. Convio.net
Guru Interstellar 1 year ago

Great Strides - Cystic Fibrosis Foundation - Convio

https://secure2.convio.net/cffhdev/site/SPageServer?pagename=143_gs_la...

Search below to find a Great Strides Walk in your area. ... These fighters, who have cystic fibrosis, are committed to helping raise awareness ... Connect With Us ...

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13. Uh.edu
Critic 1 year ago

Great Strides - HHP Sponsors 2014 Cystic Fibrosis Walk ...

https://uh.edu/class/hhp/news-and-events/news-archives/2014/14-cff-wal...

The Department of Health and Human Performance sponsored the annual "Great Strides - Taking Steps to Cure Cystic Fibrosis" walk on Saturday May 17th ...

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Recent Tweets By cf_foundation

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@CF_Foundation Breanna Dalton felt like an imposter in the cystic fibrosis community because her son with CF is healthy while others are not. She wondered, "Is it right to expect sympathy when your child is not yet afflicted with the worst this disease has to offer?" https://t.co/iStGXYNfRw
2023-01-19 08:30:03
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@CF_Foundation We’re taking this moment to reflect on our actions in 2022 to address equity, racial justice, diversity, and inclusion in CF. In 2023 and beyond, we are committed to embedding these principles in all we do to advance our mission of finding a cure for CF. https://t.co/Y0gukjtXM8 https://t.co/8t064QfNCn
2023-01-19 03:40:06
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@CF_Foundation Your financial planning journey may be unique to you, but you are not alone. Living with #cysticfibrosis can be costly and financial planning can help ease some of the stress. Need some help along the way? Talk to your CF care team or call Compass. https://t.co/fCupFX6Qn0
2023-01-18 07:00:06
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@CF_Foundation You can explore more trends in the 2021 Patient Registry Annual Data Report: https://t.co/0q4tRxfbZ9
2023-01-17 05:09:43
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@CF_Foundation Thanks to advances in research and care, the proportion of adults with cystic fibrosis — at 62% — has surpassed that of children. While we’re encouraged by these trends, there is more to be done to meet the changing needs of the CF community. https://t.co/xDI5V08YUu
2023-01-17 05:09:42
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@CF_Foundation On this #MLKDay of Service, we want to thank every member of the #cysticfibrosis community who remains committed to helping us find a cure. We wouldn’t be where we are today without you! https://t.co/RMaKNqGDKm
2023-01-16 04:30:23
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@CF_Foundation Join us virtually to celebrate our progress made in 2022 with members of the cystic fibrosis community at our National Annual Meeting Thursday, January 26 at 8 p.m. ET, 5 p.m. PT. Plus, don’t miss the opportunity to ask Foundation leaders your questions. https://t.co/WFpTq03kQT https://t.co/Bu5rafeUMs
2023-01-14 05:30:54
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@CF_Foundation “I watched everyone around me take their voice, their sleep, and their health for granted. I ended up telling one of my friends that I must have a secret disease with no cure because no one else that I knew struggled like I did.” https://t.co/c6TbFMpWpY
2023-01-13 06:00:57
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@CF_Foundation Today is #NationalPharmacistDay! Help celebrate the work that pharmacists do for the #cysticfibrosis community by sharing your thanks to your pharmacist in the comments. https://t.co/PEiqilxShg
2023-01-12 09:00:56
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@CF_Foundation Don’t miss out on this community moment — it's an opportunity to ask premier leaders in CF your questions! Everyone who registers for our third annual National Annual Meeting will receive a recording so you can watch on your time. https://t.co/WFpTq03kQT https://t.co/i8gfvbreeB
2023-01-12 04:59:49
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@CF_Foundation Celebrate progress made in 2022 with members of the CF community and our President and CEO, Michael Boyle, MD, who will share his vision for the year ahead during our National Annual Meeting, Thursday, January 26 at 8 p.m. ET, 5 p.m. PT.
2023-01-12 04:59:49
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@CF_Foundation Gyms are great places to exercise, but they’re also great places for germs to spread. Be sure to use alcohol-based gel to wipe down weight machines, mats, treadmills, and any other gym equipment before using it to reduce your risk of getting sick. https://t.co/hmy70b3Qgh
2023-01-11 05:30:54
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@CF_Foundation Today, we announced our investment of up to $15M in ReCode Therapeutics for preclinical research and early-stage clinical trials for their mRNA therapy, which could eventually provide a treatment option for all people with #cysticfibrosis. https://t.co/XxJGSXuNzT
2023-01-10 03:44:24
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@CF_Foundation We are investing up to $3.5M in Gensaic Inc. to conduct preclinical research to develop a new approach to deliver a gene therapy to the lung cells of people with #cysticfibrosis. https://t.co/Er8ivtdAm3
2023-01-09 07:00:25
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@CF_Foundation “I am not a nutritionist — and really, for a vegetarian, I don't eat as many vegetables as I should. Thankfully, I am a planner who loves to cook; so, over time I experimented and learned tricks along this journey.” https://t.co/SPGaFEbNwZ
2023-01-08 04:30:48
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@CF_Foundation “I have always been creative. My creativity has gotten me through my teenage angst and losing my father to pancreatic cancer. Now my creativity is carrying me through the CF mom life. When I am creating, I am not worried.” https://t.co/NZnt9HLAMd
2023-01-07 05:00:50
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@CF_Foundation When Rickey Powell's children were diagnosed with CF, he was determined to do whatever he could to help. That determination led him to reach out to @DixxonFlannelCo who created a limited-edition shirt with a portion of the proceeds going to the Foundation. https://t.co/SBgJHSheGe https://t.co/WfeAQNjfas
2023-01-06 08:30:50
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@CF_Foundation We are excited to work alongside lawmakers to reintroduce similar legislation this Congress, and to continue advocating alongside our fierce community to get more antibiotics and antifungals in the hands of patients who need them most. #SquashSuperbugs #CFAdvocacy
2023-01-06 06:01:22
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@CF_Foundation Get involved with our advocacy work: https://t.co/NP7vVI6NtR
2023-01-06 06:01:22
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@CF_Foundation We thank every person who shared their story in support of the #PASTEURAct. Even though it didn’t pass, the conversation about antimicrobial resistance has grown substantially, due in no small part to the #cysticfibrosis community. #CFAdvocacy
2023-01-06 06:01:22
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@CF_Foundation The cystic fibrosis community led the charge to advocate for the #PASTEURAct, bipartisan legislation that would support novel antibiotic and antifungal development. Unfortunately, while the bill did not pass before the end of the 117th Congress, we’re not done yet. #CFAdvocacy
2023-01-06 06:01:21
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@CF_Foundation When Jennifer Albright received a late #cysticfibrosis diagnosis, the anger she felt about it was contagious for her son, who was dealing with his own diagnosis. Jennifer found support and learned to focus on the things she can control. https://t.co/KLIINIdLi5
2023-01-05 05:30:49
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@CF_Foundation Carolyn Ottke-Moore, a parent and adult with CF, spent a lot of time in the hospital when her children were growing up. With time, Carolyn and her husband learned how to reduce their children’s fears and even make the hospital visits fun, at times. https://t.co/vXfdbaPFPV
2023-01-04 09:30:48
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@CF_Foundation You’re invited! Hear our president and CEO, Michael Boyle, MD, share his vision for the year ahead during our National Annual Meeting, Thursday, January 26 at 8 p.m. ET, 5 p.m. PT. Save your seat now: https://t.co/6RObGMZiDO https://t.co/AyHRknqx9n
2023-01-04 07:00:51
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@CF_Foundation New year, same dream: finding a cure for everyone with CF. With the support of people like you, we are confident that every day we are moving one step closer to our shared mission. Thank you for your support! https://t.co/NRZa9EPRXS
2023-01-03 05:00:48
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@CF_Foundation How can you reduce the risk of getting sick when germs are everywhere? These eight tips can help you make the best decisions for yourself this cold and flu season. https://t.co/VZZUHJLzJi https://t.co/9mVV4Jb6RW
2023-01-02 06:00:43
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@CF_Foundation Winning the fight against cystic fibrosis means working harder and faster. Because of you, we are confident that we can end CF. Help us accelerate our efforts for people with CF in 2023. Make your gift before midnight: https://t.co/WPR4NmAGDy https://t.co/hAPFgVWJ0j
2022-12-31 05:00:46
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@CF_Foundation How do clinical trials work? Clinical trials are critical to developing new treatments for #cysticfibrosis. Here’s what you need to know if you are considering participating in a clinical trial for the first time. https://t.co/e8or153hI9 https://t.co/iKF3PH0o0n
2022-12-30 06:30:41
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@CF_Foundation “While awaiting a double-lung transplant, unable to work, I found companionship in people who followed my story for inspiration and perspective. This added purpose to my journey; it was something shared and so, despite my deafness, I didn't feel alone.” https://t.co/jOzr0QuchK
2022-12-29 06:30:41
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@CF_Foundation Life with #cysticfibrosis looks different for Don than when he was diagnosed in the 1960s. Now post-transplant, he is retired and enjoying his hobbies: but there is still more he wants to experience. Help people like Don achieve their goals. Give today: https://t.co/jhpOZnuFkx https://t.co/1GUy8IIPBY
2022-12-28 05:00:48
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@CF_Foundation “As the country has returned to a somewhat pre-pandemic lifestyle, I personally maintain very strict guidelines on where — and with whom — I gather to avoid exposing myself to COVID or any other virus.” https://t.co/e5BZXQxMNk
2022-12-26 06:30:41
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@CF_Foundation Over the years Mandie Sherman, an adult with #cysticfibrosis, found ways to make the best of holidays in the hospital. “It didn't matter that I was coughing a lot. Christmas joy filled the room bigger and brighter than we'd ever felt it.” https://t.co/p4L4P235Fs
2022-12-23 00:00:00
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@CF_Foundation "After my transplant, I felt adrift in an unfamiliar sea on an unfamiliar planet. Yes, I could breathe, and I was, like, 60 bags lighter if I wanted to travel. But what did I want to do with my life?" https://t.co/pKQ7UpITJl
2022-12-22 00:00:00
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@CF_Foundation "When my partner was informed that she had cystic fibrosis, I remembered thinking, 'OK, but what is that?' That was followed by arguably the most impactful Google search I’ve had to date." https://t.co/HV9s9o6RWJ
2022-12-21 00:00:00
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@CF_Foundation Living with #cysticfibrosis shouldn’t have to stop you from traveling. Plan ahead and learn tips for how to take care of your health away from home. https://t.co/el8pSnjN3T https://t.co/LeFO7DWOTh
2022-12-20 00:00:00
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@CF_Foundation We believe the decision by Vertex Pharmaceuticals will have unnecessary, consequential, & lasting impacts on the health and financial wellbeing of people with CF. Putting people with CF in the middle of an ongoing systematic issue is unfair and unwarranted.https://t.co/s7Sp8pZxOK
2022-12-19 00:00:00
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@CF_Foundation 206 CF Care Center Program directors signed a letter to Vertex explaining the clinical implications of creating barriers to care, including the possibility of people foregoing modulators because of the undue financial burden, risking their health. https://t.co/WSn4ELayBs
2022-12-19 00:00:00
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@CF_Foundation “After tremendous strides forward for so many fortunate to benefit from CFTR modulator therapies, the potential for deterioration in health is untenable … No person with CF should endure interruption in transformative modulator therapy.” – Jerry Nick, MD https://t.co/s7Sp8pYZZc
2022-12-19 00:00:00
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@CF_Foundation CW: Suicidal Ideation Before Tania Romero, an adult with cystic fibrosis, received her liver transplant, she struggled to recognize her own body. But, with the support of her family, she was able to get help and renew her positive outlook on life. https://t.co/rdATTgNvPl
2022-12-18 00:00:00
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@CF_Foundation Tube feeding shouldn’t be considered a last resort. Learn how your child with #cysticfibrosis could gain and maintain a healthy weight with tube feeding. https://t.co/DbnSjUDrqy
2022-12-17 00:00:00
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@CF_Foundation You can now order free at-home COVID-19 tests from the USPS. Orders ship free to residential households and contain four individual rapid antigen COVID-19 tests. Get yours now: https://t.co/I1bK3TCF3l
2022-12-16 00:00:00
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@CF_Foundation Experiencing a loved one with cystic fibrosis pass away can feel isolating. CF Peer Connect can connect you with someone who understands both CF and loss to support you as you move through your grief. Request a connection, whenever you are ready: https://t.co/js2fnWX93Z https://t.co/fC5gLPiEiH
2022-12-16 00:00:00
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@CF_Foundation As Ainsley Doherty experienced frequent bouts of pancreatitis, she still felt like something else was missing. She continued to advocate for her health and was diagnosed with cystic fibrosis. https://t.co/UAMqCsSFvh
2022-12-15 00:00:00
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@CF_Foundation We’re excited to announce that we expanded our lab’s footprint, creating space for startup companies and industry scientists to work and learn alongside lab staff. By sharing our expertise, we will help speed up the development of new treatments. https://t.co/zoVFM8qA9b
2022-12-15 00:00:00
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@CF_Foundation Clarisse Valles grew up learning how to help her dad with his #cysticfibrosis, teaming up with her mom as another caregiver. Today, Clarisse’s dad is post-transplant and doesn’t need as much help, but her family’s bond is stronger than ever. https://t.co/kqLQ5Wzlmb
2022-12-14 00:00:00
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@CF_Foundation Art of Green has recalled laundry detergent products due to potential contamination with bacteria including Pseudomonas aeruginosa. Consumers should immediately stop using the recalled Art of Green laundry detergent products. https://t.co/RyV9n6QI4m
2022-12-14 00:00:00
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@CF_Foundation Mary Dwight, SVP, policy & advocacy, argues genetic therapy research must be patient-driven. “Input — from people with the most at stake — shapes and improves our scientific work … and allows us to better meet the needs of people with CF.” https://t.co/dUOaCVpl1t https://t.co/Xa8TxL5JIR
2022-12-13 00:00:00
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@CF_Foundation @NicoleinMadison Nicole, thank you for showing your support on Giving Tuesday! We are so glad to hear about the positive impact of the CF Foundation.
2022-12-13 00:00:00
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@CF_Foundation We have invested up to an additional $4.85 million in Aridis Pharmaceuticals to complete a Phase 2a clinical trial for a non-traditional anti-infective drug that could help fight drug-resistant infections in people with #cysticfibrosis.  https://t.co/kLXKEQSxbX
2022-12-12 00:00:00
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@CF_Foundation “We usually judge our actions in this society by how much we can do. I'm going to judge my actions simply by how I do them. Because the reality is, at times, I may not be able to do much.” https://t.co/vuryMoLmz4
2022-12-11 00:00:00
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@CF_Foundation Did you know? People living with #cysticfibrosis are at risk for two common bone diseases: osteoporosis and osteopenia. Learn what steps you can take to improve your bone health. https://t.co/2puZdDKs9R https://t.co/7mNEsWrSUP
2022-12-10 00:00:00
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@CF_Foundation Manufacturers of many CF medications have instituted copay assistance programs to help offset the amount a member pays out-of-pocket for those medications.
2022-12-09 03:59:45
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@CF_Foundation Copay accumulator programs do not allow copay assistance dollars to count toward annual deductibles and out-of-pocket maximums. Get caught up on these programs and what they mean for you and your loved ones.
2022-12-09 03:59:45
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@CF_Foundation Los programas acumuladores de copago no permiten que los dólares de asistencia para copagos se contabilicen en los deducibles anuales ni los desembolsos máximos. Familiarícese con estos programas y lo que implican para usted y sus seres queridos. https://t.co/h59hCEd6wl
2022-12-09 03:59:44
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@CF_Foundation Fabricantes de muchos medicamentos contra la FQ han establecido programas de asistencia para copagos como ayuda para contrarrestar el monto de desembolso que pagan los miembros por esos medicamentos. https://t.co/h59hCEd6wl
2022-12-09 03:59:44
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@CF_Foundation People with #cysticfibrosis need preventive care, such as screenings and vaccines, to stay healthy. That’s why the Foundation submitted an amicus brief urging a U.S. District Court to preserve free access to these and other preventive care services. https://t.co/2JKV3ruyul
2022-12-09 00:00:00
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@CF_Foundation “Cystic fibrosis is heavy, and until a cure is found, I can't just ‘put it down.’ This mental load can be all-consuming. The emotional weight of knowing my child may not live to see old age and will experience pain is not easy to carry.” https://t.co/KzMIQ8lZZi
2022-12-08 06:00:22
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@CF_Foundation Amber Howell, an adult with cystic fibrosis, was bracing herself to be listed for a lung transplant. Then she started Trikafta, which helped stabilize her health, and avoid a transplant, for now. https://t.co/QzF0Ta1MgS
2022-12-07 06:01:00
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@CF_Foundation Today, we announced that Irena Barisic has been appointed the next Executive Vice President, Chief Operating and Financial Officer. https://t.co/sDJ4hNBfsk
2022-12-06 04:40:42
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@CF_Foundation The Infection Research Initiative Steering Committee met today to discuss research priorities for 2023. The research is part of our Infection Research Initiative, a five-year commitment to invest at least $100 million to improve the outcomes of CF-related infections. #CFResearch https://t.co/718tdMQozV
2022-12-05 05:30:37
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@CF_Foundation When Gabriella Balasa was preparing to be listed for a lung transplant, she worried about what could go wrong. By setting realistic expectations with her doctors and forming bonds with other transplant candidates, she was able to ease her fears. https://t.co/NYEqYFf5WM
2022-12-04 04:30:35
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@CF_Foundation Jaclyn Strube, a mother of a child with cystic fibrosis, shared the five things she wished she would have known before making the decision to get a g-tube for her son. https://t.co/PwL5Zo0GXf
2022-12-03 05:30:34
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@CF_Foundation Marisa Fairchild, an adult with cystic fibrosis, was prepared to brave a tough road ahead to grow her family. “I am forever grateful for the opportunity to experience the exhilarating, exhausting, heartbreaking, and heart-warming thing we call motherhood.” https://t.co/AHy45u9eI4
2022-12-02 09:00:36
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